Thursday, September 17th
12:00 - 9:00 PM
Sugarlift at High Line Nine
508 W 28th Street, New York, NY
About the exhibition:
In the face of a baby's debilitating terminal illness and a $2MM dollar price tag for treatment, we tried something radical: harnessing the power of art to save her life.
Bird by bird, it worked.
Sofia Darbinyan is six months old and has been diagnosed with a terminal illness called spinal muscular atrophy, a neuromuscular disorder that can be treated with one dose of Zolgensma, a new therapy developed by Novartis Pharmaceuticals that costs over $2MM.
In August 2020, Sugarlift in partnership with artist Dina Brodsky and Sofia's family launched a viral Instagram campaign, #birdsforsofia. Our aim was for Novartis to pay attention and help us find a creative solution to get Sofia the $2MM treatment that insurance wouldn't cover.
Within a matter of days, #birdsforsofia went viral among the artist community. Over 1500 painted and hand-drawn birds flooded Novartis's accounts and in less than a month, an anonymous donor stepped in to bridge Sofia's funding gap. Novartis is helping Sofia get the medication she needs to survive.
Sofia is saved, but our birds’ work isn’t over
The Birds for Sofia art benefit mounted by Sugarlift and High Line Nine is opening up funding efforts to support the Muscular Dystrophy Association and Cure SMA. Proceeds from your Birds for Sofia artwork purchases will go towards these organizations, and we'll continue to paint and draw our miraculous flock raising awareness for babies like Sofia.
This in-person reception will be held with social distancing protocols. Masks must be worn at all times in the gallery, and only 13 people will be admitted at a time.
Adele Renault, Alex Louisa, Alex Warnick, Amy Ordoveza, April Coppini, Brad Woodfin, Brenda Zlamany, Bryan Mark Taylor, Bryant Portwood, Chantal Poulin Durocher, Daniel Maidman, Darla Jackson, David Rice, Dina Brodsky, Ellen Jewett, Esther Huser, Hannah Yata, Jane Kim, Jessica Pisano, Julianna Wells, Ken Goshen, Laura Kennedy, Lauren Matsumoto, Lisa Lloyd, London Kaye, Lorraine Loots, Lucas Bononi, Lyubena Fox, Marshall Jones, Matthew Rucker, Michael J. Austin, Nicholas Pace, Nicolas V Sanchez, Paula Schramm, Rachel Altschuler, Richard Hughes, Russell Gordon, Sally Tharp, Sarah Margaret Gibson, Sarah Siltala, Shae Warnick, Shauna Finn, Steven Spazuk, Thorgrimur Einarsson, Tyler Vouros, Vanessa Foley, Vasilisa Romanenko, Wendy Brockman, Will Rochfort.
Thank you to our sponsors!